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Is a patient registry coming for mesothelioma?

Thousands of people die every year from mesothelioma. The deadly disease is notoriously difficult to treat, although medical advancements have improved patient outlook. Several novel treatments are also currently being studied and show promise.

Yet much work needs to be done. To advance treatment and better research the disease, some advocates have pushed for a national mesothelioma registry list. This registry would contain all patients diagnosed with mesothelioma, which could potentially help researchers further understand the disease. It may also provide patients with the tools needed to combat the disease, such as helping patients find clinical trials to participate in.

Still in initial stages

Federal funding has been provided to investigate whether a national registry would be feasible. The Centers for Disease Control and Prevention has provided the initial $100,000 to look at establishing a registry and what potential services such a registry would provide.

Mesothelioma an ongoing problem

Occupational exposure to asbestos is the most common cause of mesothelioma. Despite asbestos being banned in construction, however, exposure is an ongoing problem, particularly in demolition and sanitation. And asbestos imports have surged even while mesothelioma deaths have risen over the last several decades. Alarmingly, the CDC has also reported that younger patients are continuing to develop mesothelioma, meaning asbestos exposure has continued even after asbestos use has been limited.

Hopefully, a national registry would help doctors better diagnose and treat patients while providing resources to victims of mesothelioma.

Even if a registry is created, however, it will be some years before it is fully established.

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